Patient Resources

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General Support

Autismnj.org
NJ’s Autism resource advocacy, services, family and professional education and consultation.

Autism Speaks
Dedicated to increasing awareness of autism spectrum disorders; research and programs.
www.autismspeaks.org

Brain Injury Association of New Jersey
Experienced people to find the resources and services available.
825 Georges Rd., 2nd Floor, North Brunswick, NJ 08902
(732) 745-0200

Care
Providing financial support to people living with cancer in New Jersey. They provide assistance for transportation, child care, pain medications, and home care.
www.cancercare.org 800-813-HOPE

Catastrophic Illness in Children Relief Fund
Offering reimbursement for medical and various other costs associated with an illness.
(609)292-0600

Center For Independent Living
Transitional service for young/adult population.
(856) 853-6490

Dentistry for Special People
1910 East Route 70, Cherry Hill, NJ 08003 (856) 424-5955
188 Fries Mill Rd, Suite 101, Turnersville, NJ 08012 (856) 629-0222

Division of Developmental Disabilities
Providing assistance and resources for those under 21 with lifelong disabilities.
North Jersey Developmental Center.
P.O. Box 169, Minisink Rd., Totowa, NJ 07511
(973) 256-1700

Easter Seals New Jersey
(732) 257-6662; (800) 486-0027 www.eastersealsnj.com

Emmanuel Cancer Foundation
Provides financial assistance, material assistance, meals, and recreational assistance to pediatric cancer patients.
908-322-4323

Epilepsy Foundation of New Jersey
http://www.efnj.com/

Just 2 moms
Planting the seeds for Autism Awareness and Acceptance.
www.just2moms.com

Kinship Navigator Program
Programs and support for Grandparents and family members.
(877) 816-3211

Make A Wish Foundation:
(908) 964-5055 – http://nj.wish.org/

NJ Family Care
Low or no cost medical coverage.
(800)701-0710

NJ Helps
Programs and information on assistance within the state
www.NJHelps.org

NJ Shares
Assistance with water bills
(877) 652-9426

Performcare
State system contractor for behavioral health services.
http://www.performcarenj.org/
1-877-652-7624

State of New Jersey Resources
Website offering programs and resources within the state:
www.NJ211.org

Traumatic Brain Injury Fund
222 South Warren St.
P.O. Box 700
Trenton, NJ 08625-0700
(888) 285-3036

United Way
Burlington County
http://www.uwburlington.org

Gloucester County
www.uwgcnj.org

Camden County
www.uwccnj.org

Mercer County
(609) 896-1912
www.uwgmc.org

Millburn
United Way of Millburn – Short Hills
(973) 467-1170
www.unitedwayofmillburn.org

Milltown
United Way of Central Jersey
(732) 247-3727
www.uwcj.org

Montclair
United Way of North Essex
(973) 746-4040
www.uwne.org

Morristown
United Way of Morris County
(973) 993-1160
www.uwmorris.org

Newark
United Way of Essex & West Hudson
(973)624-8300
www.uwewh.org

Somerville
United Way of Somerset County
(908) 725-6640
www.scuw.org

 

Support Groups

Asperger’s Disorder

ASPEN (Asperger Syndrome Educational Network)
http://www.aspennj.org/

ASPEN of Essex County
Jewish Community Center- Ross Family Campus
760 Northfield Ave., West Orange, NJ 07052
Anita Finkel (973) 669-5757

ASPEN of Middlesex/Union Counties
Jewish Community Center of Middlesex County
1775 Oak Tree Rd., Edison County, NJ 08820
aspenorg@aol.com
Lori Shery (732) 321-0880

ASPEN of Northwest NJ
St. Clare’s Hospital
25 Pocono Rd., Denville, NJ 07834
Janice Lemmo (973) 541-0178

ASPEN of Ocean County
The Presbyterian Church of Toms River Haven Room
1070 Hooper Ave., Toms River, NJ 08753
aspenoc@comcast.net
(732) 473-9630

ASPEN of Burlington/Camden County
(856) 234-0677

Autism

FACES
Hammonton: www.faces-autismsupport.org

FACES
Pleasantville: www.faces-autismsupport.org

Gitens Center
www.githenscenter.org

PACT
www.solving the puzzle.org

Child Development Center
(856) 875-3600 x116

Essex County Support Group
56 Grove St., Verona, NJ
Michele Havens (201) 486-5607

Pleasantville: FACES
750 Delilah Rd., Pleasantville, NJ 08201
www.faces-autismsupport.org

Somerset County: Hop Skip and a Jump- Outreach Program
Green Knoll Firehouse
hopskipjump@optonline.net

Sussex County: SCAC (Support for Caregivers within the Autism Community)
Hopatcong Civic Center
Mati Falconetti (973) 978-5393

Down Syndrome

B.U.D.S: www.buds-sj-org

KIIDS Organization
www.kiids.org

DSACNJ: Down Syndrome Association of Central New Jersey
180 Ewingville Rd., Ewing, NJ 08638
(866) 369-6796

Epilepsy

Clayton’s Hope Organization
144 Johnson Rd., Turnersville, NJ 08012
(856) 401-0445
www.claytonshope.org

Bergen County: The Epilepsy Foundation of New Jersey
Hackensack University Medical Center
20 Prospect Ave, Suite 800, Hackensack, NJ 07601
Lorna Myers: lmyers@epilepsygroup.com

Middlesex County: Pediatric Epilepsy Support Group
JFK Medical Center
65 James St., Edison, NJ
Diance Poracky, RN: (732) 321-7000, ext. 67245

Somerset County
20 Grove St., Somerville, NJ
Tony Sacino (908) 231-7191, ext. 7268

Morris County
St. Claire’s Hospital
Denville, NJ
Beth Waters (973) 625-6241

Fathers Group
For fathers of children with disabilities: www.virtua.org

Fragile X

Fragile X Association of NJ
www.fragilex.org/html/new_jersey.htm
Jennifer Keenan (856) 985-3257

Multiple Disabilities

NJ Self-Help Group Clearinghouse
375 East McFarlan St., Dover, NJ 07801
http://www.njgroups.org/
(800) 367-6274

Parent to Parent

Epilepsy Foundation of New Jersey (Parent to Parent)
http://www.efnj.com/
Resource Coordinator (732) 528-8080

NJ Self-Help Group Clearinghouse
375 East McFarlan St., Dover, NJ 07801
http://www.njgroups.org/
(800) 367-6274

SPAN: The START Project (Statewide Technical Assistance Resource Team)
29 Halsey St., Newark, NJ 07102
www.spannj.org/START/
(973) 642-8100

Support for Siblings

Autism New Jersey’s Sibling Pen Pal Program
grainier@autismnj.org
Gale Rainier (609) 588-8200 ext. 13

Jewish Family & Children’s Service of Southern NJ Sibshops for Siblings of
Children with Special Needs
1301 Springdale Rd., Suite 150, Cherry Hill, NJ 08003
sibshops@jfedsnj.org
www.jfedsnj.org
Jane (856) 424-1333

 

Camp

Aaron’s Acres
Lancaster, PA
(717) 917-6101

Acting Antics
Glenmoore, PA
(610) 913-6018

Camp NOVA
Various locations throughout NJ
(800) 336-5843

Camp Shiver
Lawrenceville, NJ
(800) 650-7665

Camp Sunnyside
Cherry Hill, NJ
(856) 216-2121

Camp Walden Summer Program
Edison, NJ
(908) 917-2552

Children’s Beach House
(302) 645-9184

Easter Seals of Pennsylvania
Conshohocken, PA
(215) 879-1372

Elks Camp Moore
Woodbridge, NJ
(732) 326-1300

Norcom Community Center
Philadelphia, PA
(215) 613-1070

Summer L.I.F.E.
Exton, PA
(610) 296-6725, ext. 115

The Explorer’s Summer Camp
www.newbehavioralnetwork.com
(856) 874-1616

The SOAR Experience
Ramsey, NJ
(201) 934-1160

 

Recreational Activities

Baseball/Softball

Northern New Jersey
Elmwood Park Little League
www.eteamz.com/EPLLbaseball

Southern New Jersey
Challenger Baseball of New Jersey
http://challengerball.com

Horseback Riding

Atlantic Riding Center for the Handicapped
(609) 926-2233

Horseback Riding for the Handicapped of New Jersey
Sheila Fitzgibbon (e-mail: sheilafitzgibbon@msn.com)

Pegasus Therapy Associates of Mullica Hill
(856) 223-1250

Kaleidoscope Therapeutic Riding
(609) 923-7847

River Rink at Penn’s Landing
Offers “sled skating” in cooperation with the Variety Club for children with disabilities
www.riverrink.com

Sailing

Heart of Sailing
http://www.heartofsailing.org
(812) 935-7245, (866) 609-0807

Scuba

Handicapped Scuba Association of New Jersey
Jackson, NJ
(732) 928-0416

Service Dogs

Canine Partners of Life
(610) 869-4902

Special Olympics
www.sonj.org
(609) 896-8000

Sports

New Jersey Tournament of Champions
Freehold, NJ
(732) 462-7945

Wheelchair Sports Program, c/o Children’s Specialized Hospital
(888) 244-5373

Bancroft Neurohealth- Tee Ball
(856) 616-6456

Discovery Toys
www.discoverytoysinc.com

 

Schools, Day Care and Rehabilitation

Rehabilitation Centers

Camden and Gloucester Counties

Professional Therapy Services, LLC
Pediatric Therapy and Development Center
Pennville, NJ 08098: (856) 769-1049; (856) 678-4701

SJH Kids RehabCare
Vineland, NJ 08630: (856) 507-8585; (856) 691-3967 (fax)
http://www.sjhealthcare.net/content/kids

Weisman Children’s Rehabilitation Centers
Atlantic City, NJ 08401; Sewell, NJ 08080; Marlton, NJ 08053
http://www.weismanchildrens.com

Mercer County

St. Lawrence Rehabilitation Hospital
www.slrc.org (609) 896-9500

Children’s Specialized Hospital Outpatient Center at Hamilton
www.childrens-specialized.org
(609) 631-2800

Middlesex County

Bancroft Health
www.bancroft.org
(800) 774-5516

Children’s Specialized Hospital
www.childrens-specialized.org
(732) 258-7000

JFK Johnson Rehabilitation Institute
www.njrehab.org/braintrauma.htm
(732) 321-7733

Monmouth County

HealthSouth Rehabilitation Hospital of Tinton Falls
2 Centre Plaza Tinton Falls, NJ 07724
(732)-460-5320

Morris County

Kessler Institute for Rehabilitation
www.kessler-rehab.com
(973) 584-7500, ext. 230

Somerset County

Willow Creek Rehabilitation and Care Center
www.reverawillowcreek.com
(732) 246-4100, ext. 157

Schools and Day Cares

Archway
Atco, NJ: (856) 767-5757
archwayprograms.org

A.S.A.P.
An after school program for children with disabilities.
Monmouth, Ocean, Middlesex: (732) 262-8020

Bancroft
Haddonfield, NJ: (856) 429-0010
www.bancroft.org

Epilepsy Fifth Grade Education Program
A program to increase knowledge about epilepsy and seizure first aid for fifth graders. Statewide
(800) 336-5843

HollyDell School
Hurffville, NJ: (856) 582-5151
www. hollydell.org

KIDZ Connect
An after school care program which helps families find, pay or create after school care for children with disabilities.
Lower Central Region (Hunterdon, Mercer and Middlesex)
Upper Central Region (Essex, Somerset and Union)
(973) 244-0850

KIDZ Korner
An after school program providing recreational, socialization and leisure opportunities.
Ocean and Middlesex Counties
(732) 262-8020

Kingsway
Haddonfield, NJ
(856) 428-8108
www.kingswaylearningcenter.org

Larc School
Bellmawr, NJ 08031
(856) 933-3725
www.larcschool.org

St. John of God
Westville Heights, NJ
(856) 848-4700
www.sjogcs.org

The Matheny School
65 Highland Ave. Peapack, NJ 07977
(908) 234-0011

 

Frequently Asked Questions

Some of your questions, answered by a Parent of The NBN Group

I would like to begin by wishing you well upon your journey. I was in your position – filled with questions, concerns and uncertainty. The following questions are one’s which I asked and are being answered by myself, a parent of a child who spent a very long time in the hospital and needed nursing when he finally came home. 6 years later, we are still utilizing Newborn’s services for not only nursing, but also, the other services which they provide (infusions, respiratory and DME). We couldn’t be happier with our nurses, who have become part of our family and the other supervisors, who we know on a first name basis. I am now the Patient Liaison for The NBN Group and I could never imagine a company that I would be more honored to represent. Feel free to contact me should you have further questions and I hope that this resource packet will aide with your needs.

Shelby A. Myers:
(856) 220-3323 smyers@nbngroup.com

What makes your company different than the other companies?

My time is very limited, so I do not have hours to spend on the phone speaking to computers and awaiting responses. I am able to make 1 call to Newborn and speak to our staffing coordinator, clinical supervisor, DME (to order supplies), respiratory (to order oxygen, etc.) and infusions (regarding my son’s feeding pump, etc.). Also, NBN is 24/7 and I will give you an example how important this is: our son needs a portable suction machine when he goes to school and cannot go without this piece of equipment (he receives all of his therapies there, so it is very important that he attends). At 2:00am the machine stopped charging, so I got on the phone and the new machine pulled up at our house at 3:00am! This has actually transpired a couple of times over the years with various supplies being needed and not only did the driver arrive promptly, but was more than courteous- more than I would have been in the middle of the night!

Will my nurse be the right “fit” for our family and will they be skilled in our child’s care?

We have had the pleasure of meeting many nurses over the years, as NBN continually sends new nurses out to orient our son’s case (in the event that a nurse should call out we will have back up nursing). A couple of nurses have not “fit” with our family; therefore, it has always been our choice to let our nursing supervisor know our thoughts. There are times when we will leave the house without our son, so it was always my concern as to the skill level of the nurses. They are thoroughly and intensely trained by Newborn in every aspect of his care and I have never been uncertain leaving our child in the care of any of the nurses sent out to our home.

What if a nurse should call out?

Obviously illness, the weather, etc. will play a role in the coverage on my son’s case, but NBN has made every attempt to cover shifts that were open. They have telephoned or emailed me periodically as shifts have been filled and sent an updated calendar during the month if this happens.

This is our home, how do I let the nurses know our wishes?

When our son arrived home, it was an adjustment having a nurse in our home. The best advice that I can relay to you is to let the nurses know your wishes. I wrote a letter, explaining a brief history of my son’s illness, the dynamics of our family, what they could utilize in our home and the care that I expected for our son. This worked wonderfully, so they saw this when they first arrived and we were on the same page.

In Home Nursing Care

Contact

2 Pin Oak Lane, Suite 250
Cherry Hill NJ 08003
Phone: 856-669-0211
Fax: 856-424-0680