- General Support
- Support Groups
- Recreational Activities
- Schools, Day Care and Rehabilitation
- Frequently Asked Questions
NJ’s Autism resource advocacy, services, family and professional education and consultation.
Dedicated to increasing awareness of autism spectrum disorders; research and programs.
Brain Injury Association of New Jersey
Experienced people to find the resources and services available.
825 Georges Rd., 2nd Floor, North Brunswick, NJ 08902
Providing financial support to people living with cancer in New Jersey. They provide assistance for transportation, child care, pain medications, and home care.
Catastrophic Illness in Children Relief Fund
Offering reimbursement for medical and various other costs associated with an illness.
Center For Independent Living
Transitional service for young/adult population.
Dentistry for Special People
1910 East Route 70, Cherry Hill, NJ 08003 (856) 424-5955
188 Fries Mill Rd, Suite 101, Turnersville, NJ 08012 (856) 629-0222
Division of Developmental Disabilities
Providing assistance and resources for those under 21 with lifelong disabilities.
North Jersey Developmental Center.
P.O. Box 169, Minisink Rd., Totowa, NJ 07511
Easter Seals New Jersey
(732) 257-6662; (800) 486-0027 www.eastersealsnj.com
Emmanuel Cancer Foundation
Provides financial assistance, material assistance, meals, and recreational assistance to pediatric cancer patients.
Epilepsy Foundation of New Jersey
Just 2 moms
Planting the seeds for Autism Awareness and Acceptance.
Kinship Navigator Program
Programs and support for Grandparents and family members.
Make A Wish Foundation:
(908) 964-5055 – http://nj.wish.org/
NJ Family Care
Low or no cost medical coverage.
Programs and information on assistance within the state
Assistance with water bills
State system contractor for behavioral health services.
State of New Jersey Resources
Website offering programs and resources within the state:
Traumatic Brain Injury Fund
222 South Warren St.
P.O. Box 700
Trenton, NJ 08625-0700
United Way of Millburn – Short Hills
United Way of Central Jersey
United Way of North Essex
United Way of Morris County
United Way of Essex & West Hudson
United Way of Somerset County
ASPEN (Asperger Syndrome Educational Network)
ASPEN of Essex County
Jewish Community Center- Ross Family Campus
760 Northfield Ave., West Orange, NJ 07052
Anita Finkel (973) 669-5757
ASPEN of Middlesex/Union Counties
Jewish Community Center of Middlesex County
1775 Oak Tree Rd., Edison County, NJ 08820
Lori Shery (732) 321-0880
ASPEN of Northwest NJ
St. Clare’s Hospital
25 Pocono Rd., Denville, NJ 07834
Janice Lemmo (973) 541-0178
ASPEN of Ocean County
The Presbyterian Church of Toms River Haven Room
1070 Hooper Ave., Toms River, NJ 08753
ASPEN of Burlington/Camden County
Child Development Center
(856) 875-3600 x116
Essex County Support Group
56 Grove St., Verona, NJ
Michele Havens (201) 486-5607
750 Delilah Rd., Pleasantville, NJ 08201
Somerset County: Hop Skip and a Jump- Outreach Program
Green Knoll Firehouse
Sussex County: SCAC (Support for Caregivers within the Autism Community)
Hopatcong Civic Center
Mati Falconetti (973) 978-5393
DSACNJ: Down Syndrome Association of Central New Jersey
180 Ewingville Rd., Ewing, NJ 08638
Clayton’s Hope Organization
144 Johnson Rd., Turnersville, NJ 08012
Bergen County: The Epilepsy Foundation of New Jersey
Hackensack University Medical Center
20 Prospect Ave, Suite 800, Hackensack, NJ 07601
Lorna Myers: firstname.lastname@example.org
Middlesex County: Pediatric Epilepsy Support Group
JFK Medical Center
65 James St., Edison, NJ
Diance Poracky, RN: (732) 321-7000, ext. 67245
20 Grove St., Somerville, NJ
Tony Sacino (908) 231-7191, ext. 7268
St. Claire’s Hospital
Beth Waters (973) 625-6241
For fathers of children with disabilities: www.virtua.org
Fragile X Association of NJ
Jennifer Keenan (856) 985-3257
NJ Self-Help Group Clearinghouse
375 East McFarlan St., Dover, NJ 07801
Parent to Parent
Epilepsy Foundation of New Jersey (Parent to Parent)
Resource Coordinator (732) 528-8080
NJ Self-Help Group Clearinghouse
375 East McFarlan St., Dover, NJ 07801
SPAN: The START Project (Statewide Technical Assistance Resource Team)
29 Halsey St., Newark, NJ 07102
Support for Siblings
Autism New Jersey’s Sibling Pen Pal Program
Gale Rainier (609) 588-8200 ext. 13
Jewish Family & Children’s Service of Southern NJ Sibshops for Siblings of
Children with Special Needs
1301 Springdale Rd., Suite 150, Cherry Hill, NJ 08003
Jane (856) 424-1333
Various locations throughout NJ
Cherry Hill, NJ
Camp Walden Summer Program
Children’s Beach House
Easter Seals of Pennsylvania
Elks Camp Moore
Norcom Community Center
(610) 296-6725, ext. 115
The Explorer’s Summer Camp
The SOAR Experience
Northern New Jersey
Elmwood Park Little League
Southern New Jersey
Challenger Baseball of New Jersey
Atlantic Riding Center for the Handicapped
Horseback Riding for the Handicapped of New Jersey
Sheila Fitzgibbon (e-mail: email@example.com)
Pegasus Therapy Associates of Mullica Hill
Kaleidoscope Therapeutic Riding
River Rink at Penn’s Landing
Offers “sled skating” in cooperation with the Variety Club for children with disabilities
Heart of Sailing
(812) 935-7245, (866) 609-0807
Handicapped Scuba Association of New Jersey
Canine Partners of Life
New Jersey Tournament of Champions
Wheelchair Sports Program, c/o Children’s Specialized Hospital
Bancroft Neurohealth- Tee Ball
Schools, Day Care and Rehabilitation
Camden and Gloucester Counties
Professional Therapy Services, LLC
Pediatric Therapy and Development Center
Pennville, NJ 08098: (856) 769-1049; (856) 678-4701
SJH Kids RehabCare
Vineland, NJ 08630: (856) 507-8585; (856) 691-3967 (fax)
Weisman Children’s Rehabilitation Centers
Atlantic City, NJ 08401; Sewell, NJ 08080; Marlton, NJ 08053
St. Lawrence Rehabilitation Hospital
www.slrc.org (609) 896-9500
Children’s Specialized Hospital Outpatient Center at Hamilton
Children’s Specialized Hospital
JFK Johnson Rehabilitation Institute
HealthSouth Rehabilitation Hospital of Tinton Falls
2 Centre Plaza Tinton Falls, NJ 07724
Kessler Institute for Rehabilitation
(973) 584-7500, ext. 230
Willow Creek Rehabilitation and Care Center
(732) 246-4100, ext. 157
Schools and Day Cares
Atco, NJ: (856) 767-5757
An after school program for children with disabilities.
Monmouth, Ocean, Middlesex: (732) 262-8020
Haddonfield, NJ: (856) 429-0010
Epilepsy Fifth Grade Education Program
A program to increase knowledge about epilepsy and seizure first aid for fifth graders. Statewide
Hurffville, NJ: (856) 582-5151
An after school care program which helps families find, pay or create after school care for children with disabilities.
Lower Central Region (Hunterdon, Mercer and Middlesex)
Upper Central Region (Essex, Somerset and Union)
An after school program providing recreational, socialization and leisure opportunities.
Ocean and Middlesex Counties
Bellmawr, NJ 08031
St. John of God
Westville Heights, NJ
The Matheny School
65 Highland Ave. Peapack, NJ 07977
Frequently Asked Questions
Some of your questions, answered by a Parent of The NBN Group
I would like to begin by wishing you well upon your journey. I was in your position – filled with questions, concerns and uncertainty. The following questions are one’s which I asked and are being answered by myself, a parent of a child who spent a very long time in the hospital and needed nursing when he finally came home. 6 years later, we are still utilizing Newborn’s services for not only nursing, but also, the other services which they provide (infusions, respiratory and DME). We couldn’t be happier with our nurses, who have become part of our family and the other supervisors, who we know on a first name basis. I am now the Patient Liaison for The NBN Group and I could never imagine a company that I would be more honored to represent. Feel free to contact me should you have further questions and I hope that this resource packet will aide with your needs.
Shelby A. Myers:
(856) 220-3323 firstname.lastname@example.org
What makes your company different than the other companies?
My time is very limited, so I do not have hours to spend on the phone speaking to computers and awaiting responses. I am able to make 1 call to Newborn and speak to our staffing coordinator, clinical supervisor, DME (to order supplies), respiratory (to order oxygen, etc.) and infusions (regarding my son’s feeding pump, etc.). Also, NBN is 24/7 and I will give you an example how important this is: our son needs a portable suction machine when he goes to school and cannot go without this piece of equipment (he receives all of his therapies there, so it is very important that he attends). At 2:00am the machine stopped charging, so I got on the phone and the new machine pulled up at our house at 3:00am! This has actually transpired a couple of times over the years with various supplies being needed and not only did the driver arrive promptly, but was more than courteous- more than I would have been in the middle of the night!
Will my nurse be the right “fit” for our family and will they be skilled in our child’s care?
We have had the pleasure of meeting many nurses over the years, as NBN continually sends new nurses out to orient our son’s case (in the event that a nurse should call out we will have back up nursing). A couple of nurses have not “fit” with our family; therefore, it has always been our choice to let our nursing supervisor know our thoughts. There are times when we will leave the house without our son, so it was always my concern as to the skill level of the nurses. They are thoroughly and intensely trained by Newborn in every aspect of his care and I have never been uncertain leaving our child in the care of any of the nurses sent out to our home.
What if a nurse should call out?
Obviously illness, the weather, etc. will play a role in the coverage on my son’s case, but NBN has made every attempt to cover shifts that were open. They have telephoned or emailed me periodically as shifts have been filled and sent an updated calendar during the month if this happens.
This is our home, how do I let the nurses know our wishes?
When our son arrived home, it was an adjustment having a nurse in our home. The best advice that I can relay to you is to let the nurses know your wishes. I wrote a letter, explaining a brief history of my son’s illness, the dynamics of our family, what they could utilize in our home and the care that I expected for our son. This worked wonderfully, so they saw this when they first arrived and we were on the same page.