Local News & Events

New Jersey Wave – Free Summer Camp for Children Who Have Medical Needs

 

NEW JERSEY WAVE is a summer camp for children who have medical needs sponsored by Voorhees Pediatric facility and funded by New Jersey Pediatric Patient Charitable Trust Fund.  WAVE is a free camp for children who have medical needs such as the need for medical ventilation, trachs, feeding tubes, or help with daily care.  The aim of the program is to allow this population to experience what many New Jersey kids enjoy at our shore.  Time at the beach, boardwalk, arcades, picnics, campfires, crafts, and hanging out with other kids.

WHERE

The community center of Holy Trinity Greek Orthodox Church, in Egg Harbor Township.  This is located about 10 miles from Ocean City.  The camp is not affiliated with any religious organization, but merely uses these spacious and handicapped facilities.

WHO

Children 8 – 18 or still in school, who are cognitively functioning within 2 years of their age level.  Children will spend most of their day involved in activities, so each child should be able to tolerate spending time outdoors (within reason) and spending the day in his/her wheelchair if one is used.  Hospital beds will be present at bedtime.

MEDICAL CARE

We have very experienced nurses, respiratory therapists, and doctors, including a pediatric pulmonologist at the camp.  Staff is provided 24 hr/day.  Any child with a stable medical condition will be considered, such as children with neuromuscular disease, lung disease, hearing or visual impairment, etc.  our typical campers have consisted of children with trachs, ventilators, wheelchairs, BiPap, feeding tubes, or complicated  and spasticity management routines.  However;  we have also had children who only need help with positioning and tube feeds.  All are welcome, and we aim to tailor our activities to try to let each child have fun.

MISSION

New Jersey WAVE was created to facilitate new friendships among children with specialized medical needs, enhance their group interactions, and promote networking with role models.  Children have the opportunity to participate in exciting outdoor activities such as the boardwalk, beach, boating, and the zoo.

This information is directly from the New Jersey Wave website.

For more information please go to:
www.newjerseywave.com

 

Halloween 5K run planned to benefit Hamilton boy who needs colon transplant 10/27

Halloween 5K run planned to benefit Hamilton boy who needs colon transplant 10/27

Halloween 5K run planned to benefit Hamilton boy who needs colon transplant 10/27

 

Halloween 5K run planned to benefit Hamilton boy who needs colon transplant 10/27

 

The NBN Group located in Cherry Hill, New Jersey is dedicated to delivering world class comprehensive home care services including, skilled nursing, respiratory equipment and therapists,  infusion and pharmacy services, and behavioral programs. It is our belief that by having all home care services originate from one company, superior coordination of care is provided and ultimately better patient outcomes are achieved.

 

HAMILTON — Like many preschoolers, Alexander Cuevas heads off to school every morning wearing his trusty backpack.

But Alexander’s is no ordinary bag packed with books and crayons. His backpack provides crucial life support, supporting his digestive system with a pump that feeds him through a nasal tube.

For 15 hours a day, the device feeds him a total parenteral nutritional fluid that lets him bounce around like most 5-year -old boys, his mother Anivel Rivera said.

“He’s an active boy,” she said. “A happy little boy.”

Alexander was born prematurely, and was initially “nothing out of the ordinary,” his mother said — until he developed necrotizing enterocolitis, the most common gastrointestinal disorder in premature infants.

The disease kills tissue in the intestines, and in 30 percent of cases, there is significant damage to the intestines and surgery is required to remove portions of the digestive system.

“He couldn’t fight it off,” Rivera said. “It destroyed his intestines. He only has 20 percent left.”

Alexander has been under the care of doctors at the Children’s Hospital of Pennsylvania and is a student at a Head Start program in Hamilton. Rivera said the school is perfect for her son, because nurses are on hand if he needs them. Other schools weren’t equipped for the challenges, she said.

The pump system, while essential, is not a long-term solution for Alexander. The Children’s Hospital of Pittsburgh has just informed his family that he has been approved for a colon transplant, Rivera said. He is on a waiting list for a donor and the family is prepared for the surgery, which will be followed by multiple checkups per week for 4 to 12 months. After the transplant he will need to take immunosuppressant drugs for the rest of his life.

To help the family with their mounting medical bills, neighbors in their apartment complex have organized “Kisses for Alexander,” holding community yard sales and selling candy to raise money.

Emma Yasinski went to one of the yard sales last year with her boyfriend Anthony Mango and was immediately taken with the boy’s story. They asked organizers Meg Molnar and Sally Vujisic how they could help.

“They invited us to the yard sale and told us Alexander would melt our hearts,” she said. “They were right.”

Yasinski and Molnar are both avid runners, participating in 5K races around the region. They decided to organize a race to raise money for Alexander’s medical bills. The All for Alexander Halloween 5K will be held at Mercer County Park in West Windsor on Oct. 27.

“Alexander’s family melted our hearts immediately and we wanted to do something to help,” Yasinski said.

Registration for the 5K is $30 for adults and $15 for children under 12. The cost of the adult one-mile walk is $25.

The costume-friendly race is scheduled to start 10 a.m., with registration beginning at 
8 a.m.

More information is online at facebook.com/allforalexander5k 

 

Original Post NJ.com